A nap is comin'

We came home yesterday at noon--exhausted. The respiration therapy lady was here to meet us with more equipment. Tom needs a humidifier to keep moist air going into his lungs--he hates it. He is supposed to wear it around his neck. I worked out a system where it hangs close to him from the pole we use to hang the feeding tube bag on. It's also become our new background "music" with a pretty loud hum.

An hour later a nurse from hospice came to get him admitted to the program. It was a busy afternoon. By 7:00 pm we were both in bed. Tom was up and down until about 1:00 am when I said that I really had to get some sleep and it he really needed something let me know, otherwise I was going to get some sleep. It's hard to say that I need something when he needs so much but without sleep I verge on cranky and I don't want to live there. He was good for the rest of the night and I slept until 7:00.

There is so much medical supplies to find places for. I need to find a small dresser for the side of the bed. It will help my morale just to get everything organized--right now it's everywhere.

Thought I would get a nap today but forgot that the lady from medicare supplement insurance was coming. But it was a good meeting and we got everything decided. Stacey is her name and she really knows her stuff--made it all make sense for me.

I totally forgot to give Tom pain meds at noon. That was something they changed in the hospital and I don't have it in my brain yet--well, I do now! Tom was really hurting. Got to get a schedule written because meds have changed. Glad for effective drugs. Hopefully when he gets his stitches out on Monday the pain will be gone. He also does a swallow test on Monday to make sure that the esophogus/trachea separation is correct. If all looks good then it won't be long until he can try some of that coffee he's been waiting for.

Am now waiting for the hospice nurse to come who will be part of our hospice team. Not enough time to lay down today so I will look forward to a nap tomorrow--a long one!